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Fast Fact:
Spina Bifida is the most common permanently disabling birth defect.  It affects eight births per day in the United States; currently an estimated 180,000 people in the United States are living with Spina Bifida.  The population in Georgia is estimated to be up to 3,000 children and adults. 

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Guardian Angel Program

Every parent hopes for a healthy, bouncing baby complete with ten fingers and ten toes.  Dreams of football players, future presidents or homecoming queens dance though an expecting parent's head....  Nothing is more devastating than when these dreams are taken away from you.

When a family discovers their child has Spina Bifida, the world quickly becomes consumed with fear of the unknown, fear for the future, and mourning for dreams that may never come true.

The SBAG has developed a program, though a team of volunteers, that helps move families past fear.  New families are teamed up with our Guardian Angel parents willing to share experiences, answer questions and help guide new families through the complex world of having a special needs child.

In addition to a mentor, participants will receive an educational kit.  Soon, with your help, this kit will include a video for new parents, allowing individuals to gain strength through understanding the birth defect and the many associated disorders that follow post-birth.

If you are looking for support or would like to participate in this program as a mentor please email sbag@spinabifidaga.org 

Resource for New Parents:

Reading Materials:
Book: Living with Spina Bifida by Adrian Sanler
Handbook: Resource for Children with Spcial Needs (Georgia Only)
 

New Parent "To Do" List:
Organize: Medical Record Binder
Find a Mentor: info@spinabifidaga.org

Cyber Support:
For Cyber Support including online support groups, other organizations in Georgia, medical care, and government resources please visit our "Helpful Links" section.

This section is new and growing everyday.  Please feel free to add suggestions, contact sbag@spinabifidaga.org.  Keep visiting to see this information grow.

 

   
 
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