Registration is now open for the 4th Annual Walk’n Roll for Spina Bifida presented by SBgenetics.org.   This event is a 1.6 mile route through Piedmont Park in Atlanta and includes family fun activities for kids. The Walk'n Roll will raise awareness for Spina Bifida. Register Now! Spina Bifida is the most common permanently disabling birth defect. It affects eight births per day in the United States; currently an estimated 180,000 people in the United States are living with Spina Bifida. The population in Georgia is estimated to be up to 3,000 children and adults. The Spina Bifida Association of Georgia, a 501 (c), promotes the achievement of full potential for persons born with Spina Bifida while emphasizing the prevention of this birth defect.   Register Now!

Registration & Family Fun Activities Begin 2 pm Walk Time 4 pm

 

 Why Get Involved….

The Spina Bifida Association of Georgia, a 501 c, implements community outreach programs through out Georgia for healthcare, independence and prevention. In 2009, the organization has focused on four initiatives:

1. Provide medical supplies free of charge to families (wheelchairs, catheters & other necessities)

2. Mentor families who have been recently diagnosed with an SB child through the “Guardian Angel” Program

3. Provide diapers via the “Diaper Depot” Program for low income children and teens, burdened with a lifetime of incontinence due to Spina Bifida

4. Host social and education activities for children, teens and adults promoting independence and awareness

 

 

About our Sponsor:

Research has shown that genetics play a role in Spina Bifida. The Spina Bifida Genetics Research Project is currently enrolling participants in a study to determine if genetic variations in an individual’s folic acid metabolism account for an increased risk of having a child with Spina Bifida.  If the results of the study are positive, it may be possible to develop a test that can identify at-risk women prior to conception.  They could then be treated by their physicians the same way as women who have had previous Spina Bifida affected pregnancies – with high dose folic acid supplementation.